RSI-UK.RSI-UK Digest for 17 May 2001

I know there is research out there already. The thing is that most research into Fibromyalgia is very vague and has always concluded that there is little that can be done about it apart from palliative care, such as trigger point treatment stretches and exercise that helps to maintain flexibility in structures (although it doesn’t always and as soon as you stop things tighten up). I have had trigger point treatment through my chiropractor and he can’t understand why I don’t respond in the right way. Pressure on the trigger points is supposed to alleviate the pain and help flush out the toxins building up in the muscles, giving relief when the pressure is removed. In me it just flares things up more and more for days to come and has no lasting effect. There are specific diagnostic criteria for it to be applied, but if you don’t meet them there’s also myofascial pain syndrome (a kind of catch all/doctor doesn’t really know what else to call it when you don’t quite meet all of the diagnostic qualifications for FM but exhibit generalised muscle pain and related symptoms).

The point about this guy’s work is that it moves away from having to have the 11/18 points of pain and looks at a more mixed bag of symptoms, including the tiredness, lack of stamina, loss of concentration, etc etc. He’s also not trying to just put a label on it. He himself suffers from the condition and found himself less and less able to function as a doctor because of the pain in strange areas and all the other symptoms that develop over time, problems which reduced with treatment. Part of his research has found that most people’s problems become chronic after some sort of trigger, such as a car accident, major stress.

I think you’re right that this is not necessarily the answer for everyone and I would not dream of suggesting that it is a miracle cure. I think those who have RSI symptoms form a mixed bag. Some with postural problems, changing workstations etc should help them to recover. Others with Chiropractic type problems such as nerve compression etc and being treated for this should help. Others with overwork damage, like over exercising and for them rest, educated physio and better work practices should help them improve. But I think there probably is a small group; those who have tried everything followed all the advice given but just keep on deteriorating in areas other than those where the problem specifically began could be well served to consider checking out the site I mentioned yesterday. In my case I started with typical RSI symptoms in both wrists, forearms, upper arms, neck upper back but over the years it has spread to my hips, lower back, ankles, base of my feet, even my jaw has seized up for no reason and in this time I have not been working, have not been using my computer to the extent that I did but have kept active mentally and physically so that the deterioration cannot be put down to vegetating and is not psychological but very physical and very shitty.

“. ..I always feel that if I could stop doing what causes it (i.e. if work didn’t hurt!) then it’s OK and I’ll recover – whether or not I have some underlying illness/disability or not doesn’t really matter if the job I’m doing is causing me to be in pain and making things worse, then that isn’t right, is it? “I felt exactly the same as you and I had over two years without doing anything (almost killed me). The pain did subside to some extent but as soon as I start doing small things like hovering, carrying things, writing a little, it came back tenfold. It was only after about 7 years, when on a pain management course that I came to understand that it was very likely that I would never get better that I could move on to try and manage the pain and find ways of working with it rather than hoping it to go.

….”I can go with RSI causing FM or similar symptoms of generally annoyed (bits or all of) body and then being hard to throw off – but I can’t go with FM being the whole answer or the whole cure if you actually have an injury/trauma -which is, of course, what RSI is. “The point about this guy’s explanation is that the pain is real, it is caused by the buildup of phosphates in the body which leads to the muscles not functioning properly, being constantly working and therefore become tired and overused much more quickly than a “normal” person which leads to the pain and aching and pins and needles and all the other things that we all feel. The Guai allows the phosphates to be cleared out which allows the body to work properly again, eventually although it can be a long process. This is why his attitude to FM and RSI is so much more acceptable than the previous research. You would to be well placed to ignore most of what you have read about FM in the past simply because it offers no explanation about what is happening, as many of the other terms applied to the condition.

Anyway I’m not going to enter into a long debate about this. I have too many other things to do with my limited resources. I would just say don’t let previous research into FM put you off this guys “new” approach which stemmed from having to sort himself out. Once you’ve tried everything else and get pig sick of feeling 100 when you’re only 36 (in my case) have a go, or not as the case may be.

Comment: Is Guainifestin beneficial if you think you have FM? I believe I do and would welcome trying this if people have seen it work?

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